Interstitial lung disease Saudi patients; what about their health-related quality of life in 2024

Abstract

Background: More than 200 rare diseases are classified as interstitial lung diseases. These conditions are distinguished by different levels of lung inflammation and fibrosis, and they are linked to significant reductions in the quality of life for those who are afflicted.

Aim of study: Was to assess health related quality of life among patients with interstitial lung disease. Research design: A descriptive research design was utilized to conduct this study.

Setting: The study was conducted at the Chest Out- Patient Clinics at Taif University Hospital, Saudi Arabia.

Sample: A convenient sample of 70 patients with confirmed diagnosis.

Tools: Two main tools were used I: A structure interviewing questionnaire which included 5 parts a) socio-demographic characteristics of patients with interstitial lung disease, b) Medical history of patients. C)Home environment of patients, d) Knowledge of patients regarding interstitial lung disease and e) Reported practices ofthe studied patients with interstitial lung disease II: Quality of life scale was adopted to assess physical, psychological and social domains of quality of life.

Results: 38.6% of patients had poor total knowledge score about interstitial lung disease. On the other hand, 52.9% of them had satisfactory total practices score toward interstitial lung disease. Regarding quality of life 52.9% of patients had low quality of life and only 7,1% of them had good quality of life.

Conclusion: There were statistically significant relations between total knowledge, practices and qualityof lifescoreof the studied patients and their educational level. There was a statistically significant correlation between total quality of life of studied patients and their total practices. While there was highly statistically significant correlation between the studied patients’ total knowledge and their total practices.

Recommendations: Educational programs should be conducted at Out- patients Clinicsto improve knowledge, practices and quality of life of patients with interstitial lung disease.